The Pathways Study includes data collected directly from study participants via in-person, mailed, or telephone interviews; genotype and biospecimen assay data; and data from linkages to clinical and administrative healthcare databases, environmental exposure databases, and geospatial and neighborhood-level data. Many of our data dictionaries are available in the searchable table below, and this information can be downloaded directly to your computer. Please check back here often as new data dictionaries become available. If you are unable to find a data dictionary for the data you are interested in, please contact us so we can determine if we can accomodate and fulfill your needs.
| Name | Time Period | Description | Download File | Bulk Download |
|---|---|---|---|---|
| Main Questionnaire 1 | Baseline | Contains raw participant level demographic information, such as date of birth, race and ethnicity, and country of origin for both the participant and family members. It also contains prenatal exposures, family health history, pregnancy, developmental, child health, menstrual, breast cancer screening, and smoking histories. | dd_bq1.zip | |
| Physiology of Aging Questionnaire | Baseline | Contains raw participant level information on participants' ability to complete mobility exercises. The questionnaire also contains information on need for assistance during daily activities, incontinence, pain, and limitations due to emotional and/or physical health problems. | dd_bage.zip | |
| Baseline Anthropometry Questionnaire | Baseline | Contains raw participant level information of human body measurements, including waist, hip, arm, and wrist measurements. | dd_ban.zip | |
| Complementary and Alternative Medicine Questionnaire 1 | Baseline | Contains raw participant level information on use of herbal and botanical supplements, natural products, special diets, mind-body healing approaches, as well as body-based and energy-based treatments. | dd_bcm1.zip | |
| Background and Contact Information | Baseline | Contains raw participant level information on employment status, income, email address, access to the internet and emergency contacts. | dd_blbc.zip | |
| Lymphedema Questionnaire | Baseline | Contains raw participant level information on the occurrence of lymphedema after breast cancer surgery, including possible causes, symptoms, and participant access to lymphedema resources and information. | dd_blym.zip | |
| Physical Activity Questionnaire | Baseline | Contains raw participant level information on work-related activities, household activities, and other recreational activities. | dd_bpa.zip | |
| Social Measures Questionnaire | Baseline | Contains raw participant level information on quality of life, perceptions of medical care, medical information received, physician relationship, social support, and breast cancer related symptoms. | dd_bsm.zip | |
| Cancer Registry | Baseline | Contains tumor, patient, and treatment characteristics for Pathways Study participants. These data come from the Kaiser Permanente Northern California Cancer Registry, which also reports data for public health surveillance purposes to the California Cancer Registry, and to the San Francisco Bay Area and Greater California Surveillance, Epidemiology, and End-Results (SEER) Program of the National Cancer Institute (NCI). | dd_cancerregistry.zip |