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Request Data

Interested in working with Pathways Study Data?

We invite you to collaborate with us by proposing an analysis using existing Pathways data or by proposing an ancillary study using the Pathways Study population, biospecimen or medical records.

To do so, please follow these steps:

  1. Familiarize yourself with the Pathways publications and biospecimen policies.
  2. Review Pathways published manuscripts and funded ancillary studies to learn more about what has already been accomplished.
  3. Review the Pathways data documentation page to learn more about available data.
  4. Download and complete the Pathways Proposal Form.
  5. Send completed Pathways Proposal Form by email to the Pathways email address (dor-pathways@kp.org) with the subject line "Pathways Proposal Form".
  6. The Pathways Steering Committee typically meets on a monthly basis to review new proposals.
  7. Following the review, we will communicate their decision to you. (e.g., approval, request for clarifications, etc.).
  8. If clarifications are requested, email your responses to the Pathways email address (dor-pathways@kp.org). We will share your responses with the Pathways Steering Committee and request full approval.

Once approved...

For grant proposals:

  1. If preliminary data is required for your grant application, download and complete the Pathways Data Request Form.
  2. Send completed Pathways Data Request Form to the Pathways email address (dor-pathways@kp.org) with the subject line "Pathways Data Request Form"
  3. Upon receiving your data request form, we will confirm your IRB status and initiate a data sharing agreement (if needed).
  4. A Pathways programmer will assemble your dataset(s) and will request clarifications as needed.
  5. Once IRB approval is received and data sharing agreement executed, a Pathways programmer will transmit your dataset(s) to you over the Kaiser Permanente Secure File Transfer platform.
  6. Circulate any draft grant applications to co-investigators.
  7. Periodically update the Pathways co-investigators on grant application and funding status.

For manuscripts proposals:

  1. Download and complete the Pathways Data Request Form.
  2. Send completed Pathways Data Request Form to the Pathways email address (dor-pathways@kp.org) with the subject line "Pathways Data Request Form".
  3. Upon receiving your data request form, we will confirm your IRB status and initiate a data sharing agreement (if needed).
  4. A Pathways programmer will assemble your dataset(s) and will request clarifications as needed.
  5. Once IRB approval is received and data sharing agreement executed, a Pathways programmer will transmit your dataset(s) to you over the Kaiser Permanente Secure File Transfer platform.
  6. Please use the Pathways manuscript checklist as a guide.
  7. We may ask that you share analysis updates at our monthly Pathways Data Analysis meetings.
  8. Circulate any results and draft manuscripts to co-authors.
  9. Notify Pathways Study team upon acceptance of abstracts accepted for conference presentations or journal publications.
  10. For published manuscripts, send to the Pathways email address (dor-pathways@kp.org) a completed Pathways Final Manuscript Form, de-identified dataset(s) used to produce the results in the manuscript, well documented programming code, and documentation as outlined in the 2nd page of the Pathways Final Manuscript Form, within 30 days of acceptance of manuscript.